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National and State Data From Federal Sources

You can find more information through our State and Local Data Systems resources.

This page provides links to a number of national databases from the US Department of Health and Human Services that contain information on various aspects of healthcare for children and youth. Some of these databases may be used for state-level analysis. Many of these databases also have on-line or telephone technical support and/or query tools.

Directory of (US) Department of Health & Human Services Data Resources. Site provides a list of data sources by agency.

DataFinder. Site allows reader to search by topic to find data and data resources supported by federal agencies, state and local governments.

Public Health Databases (from the Public Health Foundation): Provides links to CDC, the National Association of Health Data Organizations (NAHDO), and the Toxicology Data Network (TOXNET).

Healthy People 2010 Data from “CDC Wonder” supported by the Centers for Disease Control and Prevention, US DHHS. Site allows reader to get data by focus area and/or specific objective and year. Includes access to additional information about the definitions and ability to tailor data output to individual needs. 

Agency for Healthcare Research and Quality (AHRQ), US DHHS

Healthcare Cost and Utilization Project (HCUP) Data is collected in collaboration with state data collection efforts. HCUP is a family of health care databases and related software tools and products developed through a Federal-State-industry partnership. See also contact information for State participants.  T his project is designed to create a longitudinal standardized multi-state health data system. Databases include:

  • National Inpatient Sample (NIS) is the largest database of all payer inpatient hospital stays. The database contains discharge data from 986 hospitals in 33 states and contains data on approximately 7 million hospital stays. Additional information is available on the sampling and methodology.
  • State Inpatient Sample (SIS). Data are collected from all inpatient hospital stays in 36 participating states and transformed into a uniform format. The database contains a set of core clinical and non-clinical data elements common to all states; some additional elements may also be included in different sites. This database represents approximately 85% of all community hospital discharges in the nation.
  • Kids' Inpatient Database (KID) is the only national inpatient database for children under age 18 in the United States. This database contains approximately 1.9 million hospital discharges and includes charge information, regardless of payer, including children covered by Medicaid, private insurance and no insurance. To create your own data tables using HCUP or KID, visit this interactive site.

Medical Expenditure Panel Survey (MEPS). National database of health status, healthcare costs and utilization. Survey contains four components: (1) hospital component; (2) nursing home component; (3) medical provider component and (4) insurance component. Database can link healthcare utilization and impact of changes over time to specific demographic and socioeconomic groups. This survey began in 1977 as the National Medical Care Expenditure Survey (NMCES) and was last conducted in a version called the National Medical Expenditure Survey (NMES), administered in 1987.

Maternal and Child Health Bureau, Health Services Research Administration, US DHHS

  • Child Health USA, Reports on national health status indicators for children and adolescents. Has state and city data for limited set of indicators.
  • Survey of Children with Special Health Care Needs. Database contains national and state level information on the number of children and youth (ages 0-17) with special health care needs. Data are collected form 750 families in every state and include information on access to care, unmet needs, health and functioning, the impact of the child’s health on the family, satisfaction and quality of care, and adequacy of insurance coverage. This site allows reader to create data tables according to specific interests.

National Center for Health Statistics, US DHHS

    • National Asthma Survey, sponsored by National Center for Environmental Health, CDC . Survey contains health, socioeconomic, behavioral, and environmental predictors that relate to better control of asthma and will describe the content of care and health care experiences of persons with asthma. Data will be available in late 2004.
    • National Survey of Children’s Health, a module of SLAITS sponsored by the Maternal and Child Health Bureau of the Health Resources and Services Administration, examines the physical and emotional health of children ages 0-17 years of age.  Special emphasis is placed on factors that may relate to well-being of children, including medical homes, family interactions, parental health, school and after-school experiences, and safe neighborhoods. Data will be available in late 2004.
    • National Survey of Early Childhood Health, a module of SLAITS, sponsored by the American Academy of Pediatrics. Provides national baseline data on pediatric care (and its impact) from the parent’s perspective. Questions focus on the delivery of pediatric care to families with children under 3 years of age and the promotion of young children’s health by families in their homes.
  • Behavioral Risk Factor Surveillance System (BRFSS): Supported By The Centers For Disease Control And Prevention, US DHHS. State-level data on adult substance use, tobacco use, diet and other preventive health practices and risk behaviors that are linked to chronic diseases, injuries and preventable infectious diseases. County-level synthetic data estimates for selected risk indicators may be accessed by local health departments .
  • Youth Risk Behavior Surveillance System (YRBSS), Supported By The Centers For Disease Control And Prevention, US DHHS. Developed in 1990 to track health behaviors and risk factors that contribute to death, disability and social problems among children youth and adults in the US. Public health focus. Data are collected on tobacco use, dietary behaviors, physical activity, alcohol and other drug use, sexual behaviors and sexually transmitted diseases, and behaviors that contribute to unintentional injuries and violence. Data are collected through national, state and school-based surveys every 2 years.

US Census Bureau

  • American FactFindeR (Fact Sheet): Accesses data from the Censuses of Population and Housing, the American Community Survey, and the Economic Census. Users can search Census STF databases, with metadata description, and format the results to create customized tables (or download to spreadsheets), construct reference maps to show boundaries and features for geographic entities, and produce quick thematic maps to reveal geographic patterns in statistical data. Not child-specific but useful for bigger picture, state, and community data.

 

FedStats: Federal Interagency Council on Statistical Policy. More than 70 agencies in the U.S. Federal Government produce statistics of interest to the public. This site provides easy access to the full range of county and state-level statistics and information produced by these U.S. government agencies for public use. Among the postings are county level data on immigration, crime, and poverty estimates.

 

   

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Page last updated: 06/15/2006

ACT for Health, Adolescent and Child Targets for Health Foundation, Inc., is an educational and charitable non-profit, non-governmental organization, tax-exempt under Section 501(c)3 of the Internal Revenue Code.